Karlee's had a rough couple of nights. She was complaining about her legs and her stomach hurting so she was up a fair bit and didn't get a lot of sleep. She was still in a fair bit of pain this morning so we called the primary nurse. She was an excellent resource (as always) and let us know that everything Karlee was experiencing was perfectly normal and that we shouldn't be afraid to give her codeine when she is in pain or discomfort. I think we are a little nervous about giving her a narcotic, but when you take a look at all the other drugs she is taking codeine is probably the least dangerous. It sounds like the vincristine (chemo) is causing most of her discomfort and the dexamethasone is causing the bloating and swelling that she is starting to experience.
She also replied back regarding our questions about some of the DNA testing. She forwarded the e-mail to Dr. Singh to ensure we got the correct information. Karlee has a translocation (12;21) in her chromosomal analysis. This particular translocation is associated with a good prognosis.
This afternoon we went and talked with Ryley's principal about what is happening with Karlee. Mrs. Kivi was very receptive to everything we said and was willing to do anything that was needed to help Ryley get through this time. We will be talking to Ryley's teacher early next week and will confirm with her all the details around how the school can assist.
After work we spent a little time working on Princess Bear's bed. Grandma finished all the mattresses and pillows for both bear's beds. Tomorrow we will try and finish building Princess Bear's bed and maybe get them both stained and ready for use.
Karlee had a pretty good afternoon and seemed to be much better this evening. We went down to Okotoks to go swimming. Karlee wasn't up to her usual activity level, but still hung in there and had fun. Hopefully we will be able to keep up some of our regular activities through the entire course of treatment.
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