Sunday, September 19, 2010

Mysterious Fever

Around supper time on Wednesday Karlee started to complain of the headache and we determined that she was again running a fever.  Ryley and Dad headed to hockey right after supper while Karlee and Mom headed over to Life Group.  Karlee played at Life Group and seemed to be doing good.  When we all got home Karlee was again cranky and her fever was back up again.  We gave her a bath and her chemotherapy and she went right to sleep.  We did call the on call oncologist, but he was unreachable so we ended up getting a call from the emergency room pediatrician.  We explained what was happening to him and he was fine with letting her stay at home and monitoring her overnight and then calling our primary nurse in the morning.

She ran a fever most of the night, hitting a high of 40.5, which resulted in her not sleeping well and seeming to be in pain.  The pain might just be her headache due to the fever and general weariness from the fever.  Thursday morning Karlee ended up staying home with Dad and Holly took Ryley to school while Mom did her bus run.  When Mom got back we called the clinic and they suggested that we should probably bring Karlee in to get her checked out.  They ended up giving her an IV dose of antibiotics and some fluids.

This fever seems to have several oncologists stumped.  One of the theories is that she could be fighting something that they can not determine.  She does not have any swelling in her organs that they can feel and all of them seem to be working fine.  They have taken several blood cultures and nothing is growing yet.  Another thought is she may be having an unexpected reaction to the chemotherapy.  They can't really tell which drug would be causing the fever since she gets it intermittently, without a good pattern between the fever and the drugs.

Thursday night was another bad night.  Karlee was awake many times throughout the night with a high fever and some pain.  Mom spent most of Thursday night in Karlee's bed sleeping with her.  Friday around noon was Dad's turn to head up to the hospital with Karlee for another dose of antibiotics.  The clinic was very busy on Friday and we ended up waiting over an hour before we got a bed.  Fortunately that meant that once we got in the pharmacy had sent up the antibiotics and we got the drugs and some fluids into her in a reasonable time.  Friday night was again another bad night for everyone.  Karlee was again running a fairly high fever and experiencing some discomfort.  We somehow made it through the night with enough sleep for everyone to function.
Saturday morning and early afternoon was a blur of trying to get ready for Karlee's birthday party.  We had about 16 people, including ourselves, over for supper and cake and presents Saturday.  Karlee did pretty good, but she did have a little nap in the middle of her party; there might have been a little too much playing before the party.  Everyone who came to the party did an incredible job of helping out and making everything so easy for us.  They got everything out and ready to go without any help from us.  Karlee enjoyed everyone singing to her and both Ryley and Karlee enjoyed opening their presents.
After everyone left both kids had to test out their new Wii remotes with their own games.  Finally they both got to bed.  Karlee again had a bad night and Mom ended up spending most of the night in her bed.  Sunday morning we called the on call oncologist again to see about the fever and some diarrhea that had developed over night.  The oncologist wasn't too concerned about the fever, but was more concerned about the diarrhea and the amount of fluids that Karlee was getting.  With diarrhea being one of the side effect and kidney issues being another they want to ensure that she is not becoming dehydrated.  The oncologist again wanted to examine Karlee to see if any treatment was required.

Mom took Karlee up to the hospital so Dad could take Ryley to hockey at 3pm.  When they got to the hospital they accessed Karlee's port and gave her some fluids.  The doctor examined her and figured it wouldn't hurt to give her some additional antibiotics by IV.  Everything went well and they were out of the hospital a little after 2pm.

Ryley had a good time at hockey again today except for the backward skating drills.  Obviously we didn't spend enough time on skating backwards during the last hockey season.  Oliver and Everett had a good time watching Ryley play hockey.  Afterwards we went to Toy R Us to spend some of Ryley's birthday money.  He bought a couple more Lego games and Karlee got some Barbies.  Sunday evening brought our standard dinner at Grandma's house with the family.

Hopefully next week will be a little quieter and Karlee will get back to her normal self.

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