This weekend was a lot of craft fairs and some good times with the kids. Friday Jennifer had a craft fair at the Church ministry centre. It was a fairly small craft fair but Mom had a good time and sold a few pair of slippers. We bought a very nice wreath from Allison to hang on our front door and to replace the one that went in the garbage last year. Mom had a good time staying to help clean up and visit with the other vendors.
Saturday morning we dropped the kids of at Grandma's and headed over to the Lake Bonavista Rec Centre to set everything up for the Craft Fair. Grandma brought the kids over and Mom left to take them to Kulinary Kids. The Kids Cancer Care Foundation was doing another great event for cancer patients and their siblings. Both kids had a great time making smoothies, pizzas and decorating a cake. The food must have been good because when Dad picked them up they both had food all over their cheeks.
Sunday morning Dad dropped Mom off at Grandma's and took the kids to the wave pool for a little R&R. We are trying to get Karlee out as much as possible during this protocol as she is still in good shape. The next protocol is supposed to knock her for a loop. After an hour or so of playing in the pool we headed out to spend some of the kids birthday money. Last week Grandma found a plastic castle in the alley that was in great shape, but a little dirty. Both kids have been playing with knights, princesses and fairies with the castle and have been looking for more. Ryley bought 3 knights and a horse and Karlee got a huge dragon and a fairy on a horse. A big thank you to Ingo and Melissa for the Toys R Us gift certificates.
Dad took the kids to Brewsters for lunch and had a very nice meal with both of them. They coloured and played with their new toys and actually ate a very good meal. I'm not sure how butter chicken in pub fare, but it sure was good. Dad then went and relieved Mom at the craft fair for the afternoon.
On of the ladies who was buying slippers had a nephew in Halifax who was diagnosed with leukemia about a month ago. We again realized that Karlee is pretty lucky. This little guy has been in the hospital for a full 36 days and is finishing up the induction phase of treatment. He has downs syndrome and diabetes so they need to be very careful about the effect the chemotherapy has on him. It was nice to be able to give her a little hope in telling her the next 3 months were easier on Karlee than the first. It is amazing some of the unique connections this disease lets you make.
Mom also had another vendor at the market who was very touched by Karlee's story. She donated 3 very nice paintings to the ACH and a bunch of beads for the kids to make jewelry with. Mom is going to take this all up to Unit 1 tomorrow. Hopefully the hospital and the unit can make good use of the donations.
Tomorrow is another clinic day and will be the last day of the interim maintenance protocol. She will receive her largest dose of MTX tomorrow so it may end up being a longer day due to her needing additional fluids. Assuming her counts stay high she will start on the delayed intensification protocol on Tuesday December 7th. We have been told this is the phase where Karlee will lose her hair and will probably be sicker and potentially in the hospital for part of these 2 month. We are hoping that Karlee is able to deal with the next and intensified drugs, but we are also trying to prepare for a rough couple of months.
Thank you everyone for keeping us in your thoughts and prayers and for all the support we have received in meals, phone calls, messages and everything else.
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