Wednesday morning was an interesting morning for Dad. Karlee woke up and came and snuggled with Dad in bed for a little while and then went back into her room. Dad came downstairs and started to work when he heard Karlee fussing again. When he got up there she was on her hands and knees in the hall and quickly started gagging followed shortly by vomiting. It was a very dark purple vomit which was rather concerning. Of course in the middle of this Ryley woke up, opened his door and everything was happening right there. Dad got her cleaned up and settled downstairs and then went to deal with the mess.
Of course it couldn't be that easy... as they were heading downstairs Dad noticed some dried blood on her blanket and on closer inspection around her nostril. So when Dad went up to clean up the vomit (still dark purple on the carpet) he checked out Karlee's room and found out that sometime during the night she had a nose bleed. A good portion of the next little while was spent cleaning and doing laundry. Karlee did vomit once more into the garbage can and wasn't feeling that good. She spent most of the day on the couch or getting Mom to hold her.
Jo called back around 9:30 and told us the purple vomit was probably caused by the newest chemotherapy drug (Doxorubicin). This drug is redish in colour and turned urine, vomit and even tears a colour between pink, red and purple. Jo wasn't too concerned about her reaction so far, but did suggest we get our prescription for Ondansetron filled and give it to her as a preventative measure. Ondansetron is a great anti-nausea drug that they use in the hospital when Karlee gets MTX (another chemotherapy drug). We have filled the prescription twice so far and it has expired before we gave her a single dose, but we filled it again just to have it on hand.
Wednesday afternoon Karlee was again not feeling good. We took her temperature and of course it was up again. She hit 39.2 at one point so we again called the oncall oncologist and were instructed to bring Karlee up to the unit to have her looked at. Once she was up there they took blood for a CBC and cultures and waited. When they got the results back Karlee's numbers were good (in fact better than Monday), so they gave her some antibiotics and sent them home. They got home a little after 1am so everyone was a little tired on Thursday.
Thursday morning Jo gave us a call and let us know that we should come into the clinic at 3pm to get Karlee looked at and get the second dose of antibiotics. Karlee was still pretty down, but did have a few good times. They had a very quick visit at the hospital with Dr. Singh. They discussed possibly raising the threshold for Karlee's temperature so we aren't calling as often. Dr. Singh felt she was looking ok considering what she was going through and with all the antibiotics she is on didn't feel she needed any more. They were in and out within 30 minutes and home around 4pm.
Thursday night was the Christmas event at Ryley's school. Instead of doing a concert they have the kids come in and decorate cookies and then go to the gym and sing carols. Both kids had a good time decorating and eating the cookies and signing the carols. We even got to do a new carol with actions.
Tomorrow morning Karlee is back at the hospital again for a PEG-asparaginase shot in her leg. It should be a fairly quick procedure with a hour of monitoring afterwards to ensure there is no reaction. Mom keeps saying she wants to be out of there in 2 hours. Hopefully tomorrow is a better day as the kids are supposed to be going to the Hitmen game and sitting in a suite with the Kids Cancer Care Foundation.
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