Wednesday morning Dr. Ali stopped by and told Jennifer they were going to keep them another night. He wanted to wait for all the test results to come back and for all the doctors to look over the information and make sure they knew what had happened. Karlee’s fever had finally broken about 4:30 in the morning and she was feeling much better. It was a long night for them since the nurse was in every hour to check Karlee’s temperature and take her vital signs.
Tuesday night they had put Karlee on another dose of antibiotics and then decided to give her a different one to help with the fluid on her lungs. All the antibiotics and fluids they were giving her caused her to pee very often and gave her a little diarrhea. It is nice that the hospital provided PJs since every fart seemed to be a little more than just a fart. Karlee was on issolation so she wasn’t allowed out of her room so it made for a long day. She also had an IV in her arm which limited her mobility. Thankfully they put it in her right arm so she still had her left to colour, do crafts and eat.
I arrived up there around 2pm and they were both standing at the windows looking for Santa. I figured if Santa was coming to visit he would be walking through the halls, but was I ever wrong. Santa, Mrs. Claus and a couple of elves showed up with the reindeer. Karlee quickly determined that this had to be the real Santa Claus since he brought reindeer and they only live at the North Pole with the real Santa. He walked all around the side of the hospital by us and then walked the path all around the units. It was great being on the main floor since we were very close to him. Right after Santa left Bingo started. Karlee had to play in her room so she had a walkie talkie and played over the airwaves. She won twice and got 2 lucky numbers. She won some great prizes and even got one for her brother. Child Life then brought by a ginger bread house for her to decorate. Karlee had fun decorating and Mom had fun eating the jube jubes. Wednesday night on the unit is Kids Cancer Care pizza night. We all enjoyed pizza for supper and then I headed home to pick up Ryley from Grandma’s and get him home to bed.
Thursday morning Dr. Ali again stopped by and gave Jennifer the low down on what he thought. He had seen the echo cardiogram results and there is nothing wrong with Karlee’s heart; the blood cultures had not turned up anything that was concerning and the chest x-ray showed some fluid on her lungs, but nothing to be concerned about. He figured that while they were trying to get her port working they had moved it around a little and hit her Vagus nerve. This nerve runs from her brain, through her chest and down to her groin. It regulates organ function and he figures it got bumped or jarred and that is what caused the issue. He figured there was very little chance of that happening at home since she would not be accessed at home. He said after rounds they would be discharged and on their way home. After several delays and false starts Ryley and I came up to wait for them to get the chemo to bring home.
While we were waiting and the kids were jumping around like fools, the Chaplain from the hospital stopped by to talk to us. Marcel had stopped by before an played some music for us and visited when Karlee was first on the unit. He told us that he had heard the code called Tuesday, but had assumed it was a test and was never told that the patient was still in the hospital. We had a nice chat with him and I found out some more information about the code. When I was told about the code I was told it was only 30 seconds that she was out. Today I found out that she was non-responsive for about 3 minutes.
It is nice to have everyone at home. Everyone finished their shopping today and tonight and now most of Christmas is wrapped and ready to go. Hopefully we will have an uneventful and quiet Christmas.
We would like to wish everyone a very Merry Christmas and a Happy & Healthy New Year. This year has had it’s share of ups and downs, but at the end we have made it through with the support of everyone around us. It means so much to get an e-mail, a facebook message, a text message or a phone call. Just to know that people can take the time out of their day to think about us is very comforting.
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